Skip to main content

Check Out My Guest Post!

Hello all! I just wanted to quickly invite you all to check out my new guest post, Figuring Out the Body-Mind Connection, over on Every Person Is A Philosopher, the Neighborhood Writing Alliance's blog. They are a truly wonderful org that I have the pleasure of volunteering with every once in a while. Anyway, please head on over there, read the post, and leave some lovely comments if you feel so moved!

Comments

  1. I was diagnoed with chrohns at age 33, other than a few hospital stays a year I have been able to manage it with ibuprofin. I had surgery on my shoulder and was on pain meds for a few months. Now that I have been off meds I cant eat without hurting really bad in my stomach and having diareah within minutes after eating. I feel feverish and weak. I cant take asacol and have heard the remicaid infusion can cause heart attacks. This is interfering with my life. Are there any new uninvasive treatments?

    ReplyDelete
  2. You've been nominated for a Liebster Award :)

    For more details check it out here: http://fibrovslife.blogspot.com/2013/07/the-liebster-award.html

    ReplyDelete

Post a Comment

Popular posts from this blog

Overwhelming Nuance - Dancing Crohn's Disease

Below is small segment of my Dance Studies Research Project, "Cripping Dance: Radical Representations of the Disabled Dancing Body." It's the bit I wrote about my own work, Overwhelming Nuance (excerpted below), which, as you will see, was inspired by the feelings of denial that so often accompany disease.  Nearly four years after I was diagnosed with Crohn's, it flared massively. Lost in the idea that "my disease will not define my life", I ignored for months the signs of the looming crash. This breakdown forced me to come to terms with the reality of my disease. I suddenly understood that the idea that the mind might overcome the body just supported the willful denial of my disease. After this experience, determined to force an openness about disease in my own life, I claimed disability as part of my identity and choreographed my own "crip" coming out.

I'm My Own Woman! But could I get a little help...

I went to this panel/performance at Access Living  last Friday. It was on the intersections between disability, race and community. Very interesting. There was one thing that the moderator said, though, that really struck me. It's something I've read and taken note of before, but for some reason hearing it in this context really drove the point home. He made the point that disability and disease challenge the idea of "the individual." In American society, we're pretty much taught to take care of ourselves. Individualism is extremely important to the way we conceptualize our bodies and our minds. The "I" is at the center of the American dream. If I work hard and educate myself, I can rise through the ranks of society. So, what happens to this concept when a body must depend on others to perform certain tasks, or even to make it through the day? This is more of an issue for some types of disability than others. With Crohn's, for instance, as long a...

Chronic Overshare

Every two weeks I take my Humira shot. No big deal. But, a couple days afterward the most wonderful thing happens. I poo. I mean, I take a dump . It's awesome. The thing is, I crap constantly. All the freaking time. Just not like this. This is one of those rare, deeply satisfying, glorious dumps. And I get to look forward to it every two weeks. It's a major source of joy in my life. And what's my immediate reaction every two weeks? What is the first thing I want to do as I saunter triumphantly from the bathroom? I want to tell people. I actively seek out someone to inform of the magnificent crap I just took. I'm genuinely disappointed if no one's around. My poor roommates.