Crohn's Chronicles: A blog about Crohn's Disease

The scene: You're sitting on a comfy couch having a conversation with a good friend or a family member. Someone you're very close to. Maybe you're having a cup of coffee/tea or a glass of wine. It's been a good night of sharing with someone you trust. The issue you're talking about doesn't necessarily have to be Crohn's, but let's say it is. You're feeling comfortable, so you are very honest about your experience. You decide it's okay, just for a moment, to let go of that tone of optimism you normally adopt when speaking about your disease. It's not that you've actually given up hope, you're just tired. After you finish your tale, your friend/family member looks at you lovingly and says something like, "you're the strongest person I know" or, my personal favorite, "it'll just make you stronger in the end." I've been trying to write this post for a while now, and I've been having a lot of troub...

Do you ever find yourself apologizing for your disease? Now, let me clarify, I'm not talking about literally saying, "I'm so sorry, I have this disease called Crohn's." I don't think I've ever done that. I hope not, at least... I'm talking about those times when you find yourself kind of downplaying the effect of the disease or distancing it by referring to it as "this weird thing that's really hard to explain." I mean, after all, it is a weird thing, and boy is it hard to explain , but those moments always feel to me as if I'm saying "Sorry to make you listen to my really long complicated explanation of something that is deeply personal and not really your problem in the first place." It usually happens like this: Unsuspecting Acquaintance: Hey, Maggie! You want some of this food/You want to go out tonight/Some other completely innocent question? Me: Thanks so much, that sounds great... but I can't. I'm not fe...