Skip to main content

HAWMC Day 27: Challenges and Victories

Today, I'm supposed to list five challenges and five victories having to do either with my health or my activism. Let's just dive right in.

Challenges

1) ...  ...  ...

Okay, I'm having a little trouble here. While I understand the value of identifying five challenges and five victories, I'm not sure I can. No, that's not true. I absolutely can. I just think that anything I say will be kind of arbitrary.

We do this kind of thing in dance technique classes all the time. Write down three things you need to work on and three things you do well. I always hated this exercise. Partly because, while it was so easy to think of the bad things, it was incredibly hard to define what you do well. Mostly, though, it just felt so superficial. Maybe I wasn't doing it right... but, to me, it seems the delineation between what's good and what's bad is completely arbitrary. Even in ballet, where there is a set ideal that you're constantly working towards, just because I need to work on something doesn't mean I don't do it well when I do really work on it, right? I mean, if I can identify what I need to improve and can tell you how I'm working on achieving that goal, doesn't that mean I'm doing something right?

Sorry... Got off on a little tangent there. But I think it's related. The difference between a challenge and a victory, especially in regards to something as complicated as health, is so murky. Sure, I have a hard time keeping perspective on my disease sometimes, but I would also count the moments I manage to maintain it among my victories. Do you see what I'm getting at here? Aren't the challenges just victories in progress? When you're in the middle of a rough patch, I know it's hard to see it that way, and maybe not all challenges turn out in victories. But the two ideas are definitely intertwined. Almost to the point where it's impossible to separate them.

Also, I'm really uncomfortable with the word victory. It implies that there's some kind of battle happening. There's not. Just my life. I'm not waging wars, I'm living.

Comments

Popular posts from this blog

Overwhelming Nuance - Dancing Crohn's Disease

Below is small segment of my Dance Studies Research Project, "Cripping Dance: Radical Representations of the Disabled Dancing Body." It's the bit I wrote about my own work, Overwhelming Nuance (excerpted below), which, as you will see, was inspired by the feelings of denial that so often accompany disease.  Nearly four years after I was diagnosed with Crohn's, it flared massively. Lost in the idea that "my disease will not define my life", I ignored for months the signs of the looming crash. This breakdown forced me to come to terms with the reality of my disease. I suddenly understood that the idea that the mind might overcome the body just supported the willful denial of my disease. After this experience, determined to force an openness about disease in my own life, I claimed disability as part of my identity and choreographed my own "crip" coming out.

Chronic Overshare

Every two weeks I take my Humira shot. No big deal. But, a couple days afterward the most wonderful thing happens. I poo. I mean, I take a dump . It's awesome. The thing is, I crap constantly. All the freaking time. Just not like this. This is one of those rare, deeply satisfying, glorious dumps. And I get to look forward to it every two weeks. It's a major source of joy in my life. And what's my immediate reaction every two weeks? What is the first thing I want to do as I saunter triumphantly from the bathroom? I want to tell people. I actively seek out someone to inform of the magnificent crap I just took. I'm genuinely disappointed if no one's around. My poor roommates.

I'm My Own Woman! But could I get a little help...

I went to this panel/performance at Access Living  last Friday. It was on the intersections between disability, race and community. Very interesting. There was one thing that the moderator said, though, that really struck me. It's something I've read and taken note of before, but for some reason hearing it in this context really drove the point home. He made the point that disability and disease challenge the idea of "the individual." In American society, we're pretty much taught to take care of ourselves. Individualism is extremely important to the way we conceptualize our bodies and our minds. The "I" is at the center of the American dream. If I work hard and educate myself, I can rise through the ranks of society. So, what happens to this concept when a body must depend on others to perform certain tasks, or even to make it through the day? This is more of an issue for some types of disability than others. With Crohn's, for instance, as long a...