Skip to main content

HAWMC Day 8: Conversation of the Week

The best conversation I had this week, huh? Well, that's pretty easy. On Monday I got to hang out with a former professor from my first school (Cottey College, what up?!). We spent a long time just catching up, but we also talked about Crohn's for a while. Well, I talked a lot. It wasn't until after I left that I realized I had rambled on for a really long time. Probably longer than absolutely necessary. Certainly longer than I usually do.

Anyway, the interesting thing about this particular conversation was that we originally met not too long after I was diagnosed. She knew I had Crohn's, but we never really talked about it. Actually, we never talked about it at all. I think the most communicating I ever did was to send her an email or two when I was too sick to make it out of my dorm room. I never applied for disability with the school or anything. I was so uncomfortable with the whole idea of having a chronic disease back then... I pretty much refused to deal with it.

But then there we were, sitting in a hotel in Chicago, talking about my family's history of chronic illness, my own disease, this blog and everything else. Life is funny sometimes.


The actual prompt is to write a script version of this conversation. The issue here is that it happened almost a week ago, and I do not have the kind of brain that can retain conversations word-for-word. Something about the idea of writing a script seems to indicate that I'm supposed to be transcribing the conversation exactly, and I just don't think I can pull that off. I'm fairly certain that this was not the intention of WEGO, but I'm having a hard time getting past it. So, this is mostly just a really long way of saying that what follows is not necessarily a completely accurate representation of this conversation. I'm sure my professor remembers it differently than I do. Here goes nothing...

Maggie: I'm living with my cousin and my brother now.
Prof: Oh, I think I remember you saying that last time I saw you.
Maggie: Yeah, it's been really good. My cousin has Crohn's also. 
Prof: Oh, really? 
Maggie: Yeah, you... I probably never told you... Did you know that a whole bunch of my family members have chronic diseases? I was actually just writing about this in my blog post today...  
Prof: No, I didn't know. But, you know, we never really talked about your disease when you were at Cottey 
Maggie: Right, well, I didn't really talk to anyone about it.

Okay, so this is why I could never be a fiction writer. I feel like my own voice is super present in that tiny exchange, but I definitely did not come anywhere close to making my professor sound as cool as she actually is. I actually wrote a little bit more than this, but it just started to go downhill, so I cut myself off.

I feel like the point I was trying to make is there, though. It's so interesting that this particular professor has been in my life pretty much since the beginning of my life with Crohn's, and yet until Monday she didn't know some of the most important information about my disease. It's just a strange indication of how much has changed in the past few years. How much I've changed.

Comments

Post a Comment

Popular posts from this blog

Exciting News!!

Alright folks, something really and truly exciting is in the works over here. I've been asked to contribute to this really awesome new channel that will center solely around Crohn's Disease. WEGO Health  is this really amazing online community and they're currently launching a series of channels that deal with different diseases/illnesses/ect. For those of you who aren’t familiar with WEGO Health, they’re a different kind of social media company – with a mission to empower the top 10% of online health social media contributors to connect with one another and with healthcare companies. They call those folks Health Activists – but they’re people like me and you who are community leaders, bloggers, on Facebook, on Twitter, leading online forums, and usually “all of the above.” As part of their mission, WEGO Health has recently launched a new Health Activist video platform called WEGOHealth.tv where they are presenting the authentic voice of the online community in the form...

HAWMC Day 2: The Quote(s) That Changed My Life

I've been thinking about this a lot recently. How, in my life, there are a series of identifiable moments when someone said something and it opened up the world in an entirely new way. These are often called "aha moments" in the feminist community. I've had a lot of these moments. Not all of them have been these incredible moments of clarity that allow me to better identify and speak about the injustices of the world, many of them have been much more personal. Instead of these sweeping realizations, they are slight awakenings. This does not mean that they have had a smaller impact, however. In fact, I think these  moments, more than the grand moments, change the way I live my everyday life. I've had a few of these moments in relation to Crohn's, and I know I'm bending the prompt (to pick a quote and write about it) a little bit here, but I'm having a hard time choosing which of these moments was more important to developing my understanding of what...

I'm My Own Woman! But could I get a little help...

I went to this panel/performance at Access Living  last Friday. It was on the intersections between disability, race and community. Very interesting. There was one thing that the moderator said, though, that really struck me. It's something I've read and taken note of before, but for some reason hearing it in this context really drove the point home. He made the point that disability and disease challenge the idea of "the individual." In American society, we're pretty much taught to take care of ourselves. Individualism is extremely important to the way we conceptualize our bodies and our minds. The "I" is at the center of the American dream. If I work hard and educate myself, I can rise through the ranks of society. So, what happens to this concept when a body must depend on others to perform certain tasks, or even to make it through the day? This is more of an issue for some types of disability than others. With Crohn's, for instance, as long a...